Webinar on ICD-11 use for Rare Diseases

27 September 2022 12:00 – 13:00 UTC Time

As part of WHO ICD-11 webinar series, the Classifications and Terminologies Unit in collaboration with the Healthier Populations Division at WHO and Rare Diseases International organised an ICD-11 webinar that was held on September 27th, 2022 at 12:00 UTC/14:00 CEST. The webinar focused on: 

"ICD-11 use for Rare Diseases"

Presentations can be downloaded by clicking on the respective titles below.

Agenda

14:00            Welcome notes  - WHO HQ
                     Naoko Yamamoto, Assistant Director-General - UHC/Healthier Populations
                     Stephen MacFeely, Director, Department of Data and Analytics 

14:10            Opening remarks - RDI
                     Durhane Wong-Rieger, Council Chair, Rare Diseases International (RDI)

14:20            Introduction to ICD-11 - WHO HQ
                     Robert Jakob, Unit Head Classifications and Terminologies 

14:30            Orphanet and ICD-11 - Orphanet 
                     Ana Rath, Director, Inserm, US14 - Orphanet

14:40            Coding rare diseases with ICD-11 - WHO HQ
                     Eva Krpelanova, Medical Officer, Classifications and Terminologies Unit

14:45            Q & A session - WHO HQ
                     Carine Alsokhn, Technical Officer, Classifications and Terminologies Unit 

15:00            Closing remarks - RDI
                     Durhane Wong-Rieger, Council Chair, Rare Diseases International (RDI)

ICD-11 webinar on rare diseases

If the capacity of the webinar is reached, please note that it will be live-streamed on ICD-11 Facebook page: 

For more information please contact [email protected]  

Simultaneous interpretations available in Russian and Spanish.